Martine

North Uist

I cannot even begin to say how well I feel! I am presently staying in a splendid luxury pod in North Uist. North Uist West Berneray Beach Proof I was in the splendid Hebrides sea! North Uist western coast, it speaks cor itself!

Oceans of Hope MS Sailing Charity

On 8th May I participated in the Oceans of Hope, UK based MS charity, sailing event to encourage people with Multiple Sclerosis to get out on the water and control sailing boats/yachts. I had done this activity decades ago with Glenans, in Baltimore, South Cork. Some years ago I got a National Powerboat Certificate, soContinue reading “Oceans of Hope MS Sailing Charity”

Planning trip for next year – Orkney

I have a friend who is even more enthusiastic about seeing new places, if that is possible! We are going to Borneo in August this year, but we have been talking about Orkney next year. Now to see how I operate. Here I place the bones of the trip: Selection of hotels from Booking.com: DayContinue reading “Planning trip for next year – Orkney”

The connection between Ulcerative Colitis & Multiple Sclerosis

I have had both Ulcerative Colitis and MS, the former remedies by a panproctocolectomy with end ileostomy, that to you is removal of my entire colon and anus, with end of small intestine (ileum) brought to surface of lower abdomen as an easily manageable stoma which discharges waste neatly into a small empty-able bag. IContinue reading “The connection between Ulcerative Colitis & Multiple Sclerosis”

Hebridean Adventure Upcoming!

Next month I have a lovely solo trip planned and I’m excited thinking about it! Scotland is almost easier to get to from Dublin than it is from many parts of England and Wales, and I have been more times than I can actually count. I’ve made visits, some fleeting, to all the Outer HebridesContinue reading “Hebridean Adventure Upcoming!”

Shaping up!

“You look so well” is a nice phrase I hear from time to time. MS very often does not affect appearance, and very many people with it look the very picture of health. I just added a bit of mauve colour to my hair, it suits me well, my favourite shade! Though ye can seeContinue reading “Shaping up!”

If I am having such an improvement, might Disease Modifying Treatment not help me?

Following the culmination of an insidious lung infection treatment with IV antibiotics and steroid treatment, I have regained more mobility and cognition than I’ve had in over a year. Does this not inform me that Disease Modifying Treatment have potential for me, rather than saying “it’s all just too late”. “There’s not much can beContinue reading “If I am having such an improvement, might Disease Modifying Treatment not help me?”

Radiology report quality

Once upon a time I thought radiology was an all-visible science with qualified observers able to spot all abnormalities with a keen degree of accuracy. By means of Freedom Of Information requests I have obtained quite a number of my own radiology reports, some of them remarkably inaccurate in their very basic description of myContinue reading “Radiology report quality”

Huge improvement!

Having been rescued from an absolutely frightening & horrible flare-up by the Beacon hospital, I got out two days ago. Slept virtually all of yesterday, waking up after my sleeping beauty episode I felt a lot better, and clearly my mobility and clarity of mind had improved. Then after a further good night’s sleep theContinue reading “Huge improvement!”