The connection between Ulcerative Colitis & Multiple Sclerosis

I have had both Ulcerative Colitis and MS, the former remedies by a panproctocolectomy with end ileostomy, that to you is removal of my entire colon and anus, with end of small intestine (ileum) brought to surface of lower abdomen as an easily manageable stoma which discharges waste neatly into a small empty-able bag. I

Hebridean Adventure Upcoming!

Next month I have a lovely solo trip planned and I’m excited thinking about it! Scotland is almost easier to get to from Dublin than it is from many parts of England and Wales, and I have been more times than I can actually count. I’ve made visits, some fleeting, to all the Outer Hebrides

If I am having such an improvement, might Disease Modifying Treatment not help me?

Following the culmination of an insidious lung infection treatment with IV antibiotics and steroid treatment, I have regained more mobility and cognition than I’ve had in over a year. Does this not inform me that Disease Modifying Treatment have potential for me, rather than saying “it’s all just too late”. “There’s not much can be

Radiology report quality

Once upon a time I thought radiology was an all-visible science with qualified observers able to spot all abnormalities with a keen degree of accuracy. By means of Freedom Of Information requests I have obtained quite a number of my own radiology reports, some of them remarkably inaccurate in their very basic description of my

Huge improvement!

Having been rescued from an absolutely frightening & horrible flare-up by the Beacon hospital, I got out two days ago. Slept virtually all of yesterday, waking up after my sleeping beauty episode I felt a lot better, and clearly my mobility and clarity of mind had improved. Then after a further good night’s sleep the

Home to a new reality

The Beacon “Departure Lounge” is very pleasant, like a first class airport lounge, with self-serve coffee & biscuits, with cool close-up views of the Three Rock Mountain. I was served a nice lunch of soup, roast pork with apple sauce and profiteroles for dessert. Arriving home the reality hit that my mobility remains downgraded, although

Admission to private hospital

Over the weekend felt I was losing ground, and totally losing the grip on being able to look after myself. Very little I could do for myself safely, and had lost the ability to safely drive as muscles, coordination, cognition, abdominal alertness had hit rock bottom. The exhaustion has been beyond belief. Trying to get

Lung Infection

Yesterday I had difficulty breathing upon. waking up, and felt very dizzy and ill. I’ve had an annoying bit of a cough for weeks, especially when prone and I’d wake up coughing. Having already heard that some people with MS have a “neurological cough, I parked it as a wait and see concern. My best

Bad Flare-up of MS

For past days I’ve been putting my sense of great lethargy and cognitive disability down to a possible side-effect of Baclofen, the muscle relaxant drug. However there’s been little improvement in relation to the above since discontinuing it, except maybe I can focus a tiny bit more. It’s starting to get very scary again. There’s

Travelling with MS

I began creating this blog with a load more positivity than I have conveyed in posts so far! I got stuck in individual symptoms, and all the negative stuff, whilst I completely failed to tell of the positive aspects in my life, mainly my travels! But it’s not all about ME, I want to tell